For Patients and Caregivers
Body
Support Resources
- Patient education and tools, including internet resources
Need Help? Call a Janssen CarePath Care Coordinator at 866-228-3546, Monday–Friday, 8:00 AM to 8:00 PM ET. Multilingual phone support is available.
Support from our PAH Companions
The Janssen CarePath PAH Companion* Program provides one-on-one educational support to help you start and stay on your prescribed Janssen medication and resources to help you partner with your healthcare team to better manage your pulmonary arterial hypertension (PAH).
Look to the PAH Companion Program for:
Tools to help you have more productive discussions with your healthcare team
Tips for engaging with your support network (friends, family, and peers)
Ongoing education on managing and living with PAH
Connection with a dedicated PAH Companion through email, phone, and/or text
As part of the program, PAH Companions are ready to answer your questions. Patients who have enrolled can talk to a PAH Companion by calling 866-300-1818, Monday–Friday, 8:00 AM to 9:00 PM ET.
*The PAH Companion Program is limited to education about your Janssen therapy, its administration, and/or PAH. It is intended to supplement your understanding of your therapy, and does not provide medical advice or replace a treatment plan from your doctor, nurse, or healthcare team.
Connecting with others in your community
Resources are available online that can offer support and help you connect with others who are living with your condition. These include local support groups, fundraising walks, outreach programs, online communities, and volunteer opportunities. The websites below can help you learn more about your condition and connect with others.
UPTRAVI® Website
UPTRAVI.com
This website contains information about treatment with UPTRAVI®. On this website, you can also get helpful information about your condition.
Pulmonary Hypertension Association
phassociation.org
The Pulmonary Hypertension Association is dedicated to increasing awareness and advocacy by providing information about PAH to both physicians and patients.
Scleroderma Foundation
www.scleroderma.org
The Scleroderma Foundation offers a site for scleroderma patients, caregivers, and family members—dedicated to support, education, and research.